This Personal Data Notice and Consent form describes how Informa, Pharma Intelligence , Inc. (“Informa”, “we”, “our” or “us”) may collect, use, share and transfer your personal data (i.e., data that identifies you) in the following circumstances:
This document also explains your rights under the General Data Protection Regulation (“GDPR”) (which is applicable if you are located in the European Union (EU)) and the UK General Data Protection Regulation (“UK GPDR”) (which is applicable if you are located in the United Kingdom (UK)). Please carefully review the information below.
Who determines the purposes and means of using your personal data?
Informa determines the purposes and means of using your personal data. You may contact Informa by completing our online privacy form.
Our Data Protection Officer may also be contacted at email@example.com. Our representative in the European Union and United Kingdom for data protection matters is Yasmeen Rahman and may be contacted at firstname.lastname@example.org.
What personal data is collected?
The following personal data is collected as part of your participation in the Online Community:
The following personal data is collected as part of the Survey:
With whom is personal data shared?
In connection with the Online Community, Informa will receive your personal data. Informa does not share your personal data with Sponsors in connection with the Online Community, but Informa does share non-identifiable aggregated data with Sponsors so that that Sponsors may send updates and communications to Online Community members who have opted to receive such communications regarding potential clinical trials which may be of interest.
In connection with the Survey, if your responses to the Survey indicate you are a potential candidate for a Study and you would like to be considered for the Study, you will have the option to provide your contact information and share your Survey answers with Informa and with various Sites. If you elect to share your personal data with a Site and are contacted directly by a Site, you will receive the name of the Sponsor of the Study for which you are being considered and the Sponsor’s contact details. Please note that the Sponsor is an organization which separately determines purposes and means of collecting, using and sharing your personal data; as such, the Sponsor may provide you with its own personal data notice, which may include information regarding its data protection officer and how to contact that person.
In connection with the Survey, we also share your personal data:
If you decide that you would not like Informa to share any of your personal data in connection with the Survey, simply exit the Survey without submitting it. We will retain certain responses, but this data is anonymous.
Why is this personal data collected, used and shared?
In connection with the Online Community, personal data is collected, used and shared for the following reasons:
In connection with the Survey, personal data is collected, used and shared for the following reasons:
How long will the personal data be kept?
In connection with the Online Community, your personal data will be kept by us for as long as you participate in the Online Community, unless we need to retain your personal data for a longer period to meet our legal requirements or to defend or exercise our legal rights. In these cases, we will retain your personal data only for the period necessary for us to pursue the relevant purpose.
In connection with the Survey, your personal data (should you choose to provide it to us) will be kept by us for 12 months from collection of the personal data from you, unless we need to retain your personal data for a longer period to meet our legal requirements or to defend or exercise our legal rights. In these cases, we will retain your personal data only for the period necessary for us to pursue the relevant purpose.
What are the legal bases for the collection, use and sharing of your personal data?
Our legal bases for collecting, using and sharing your personal data are as follows:
What are your rights?
Under the GDPR and UK GDPR, you have the right to:
If you would like to exercise any of the above rights, please contact us (see “How can you contact us?” below). We will respond to your request as required by law. In your request, please make clear what personal data your request relates to.
You also have a right to lodge a complaint with a data protection authority in your country of residence. If you are located within the EU, you can access a list of national data protection authorities in the EU and their contact information here: https://edpb.europa.eu/about-edpb/about-edpb/members_en. If you are located in the UK, you may lodge a complaint with the UK’s data protection authority, the Information Commissioner’s Office (ICO), here: https://ico.org.uk/make-a-complaint/.
Are you obligated to provide your personal data to Informa?
You are not obligated to provide Informa with your personal data, however, if you choose not to provide Informa with your personal data this will mean that you cannot participate in the Online Community, receive information about Studies or be connected to Sites by Informa for potential participation in Studies.
Cross-Border Transfers of Your Personal Data
For purposes of the Online Community and the Survey, Informa intends to transfer your personal data from the European Union and United Kingdom to the United States. Neither the European Commission nor the United Kingdom has determined that the laws in the United States provide an adequate level of protection of personal data. Your personal data may therefore be at greater risk once it is transferred to the United States due to this absence of a determination of an adequate level of protection and lack of safeguards to protect personal data. Despite the foregoing, Informa will take reasonable and appropriate measures to protect your personal data.
How can you contact us?
If you have any questions about this Personal Data Notice and Consent or about the way we use your personal data, or if you would like to exercise any of your rights, please contact us at email@example.com.
I acknowledge that I may withdraw my consent at any time by contacting Informa’s Privacy team via the online privacy form and submitting a request here.